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VEDS Conferences

VEDS Conferences

We are proud that Annabelle’s Challenge and The Ehlers-Danlos Support UK jointly hosted the first ever global vEDS conference in 2017 at the Village Hotel, Manchester Bury. 

Speakers and content are provided by the NHS EDS National Diagnostic Service presenting medical professionals and patients the most up to date medical information about the treatment and management of vascular EDS.

Our conferences also offer a unique opportunity for patients and families who are touched by vascular EDS to meet others with the condition, to share experiences and form lasting friendships.

The next vEDS conference takes place in May 2025.

565

VEDS PATIENTS

1 - 88

AGE RANGE

450

We support over 450 members touched by Vascular EDS. 

COL3A1

Vascular EDS is caused by a mutation in the COL3A1 gene.

740

It is estimated 740 people have Vascular EDS in the UK.
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