VEDS Conferences
We are proud that Annabelle’s Challenge and The Ehlers-Danlos Support UK jointly hosted the first ever global vEDS conference in 2017 at the Village Hotel, Manchester Bury.
Speakers and content are provided by the NHS EDS National Diagnostic Service presenting medical professionals and patients the most up to date medical information about the treatment and management of vascular EDS.
Our conferences also offer a unique opportunity for patients and families who are touched by vascular EDS to meet others with the condition, to share experiences and form lasting friendships.
The next vEDS conference takes place in May 2025.
Past Conferences
600
PATIENTS
1 - 89
AGE RANGE
500
We support over 500 members touched by Vascular EDS.
COL3A1
Vascular EDS is caused by a mutation in the COL3A1 gene.
800
It is estimated around 800 people have Vascular EDS in the UK.
