Information & Resources

Freephone Helpline

0800 917 8495
Need support & Advice?

General Enquiries

0161 797 4746
Weekdays 9am - 5pm

Our office and helpline is now closed for the Christmas period and will reopen Monday 5th January 2026.

VEDS Resource Request

If you are requesting an Ambulance Marker please provide the following additional information including your GP's email address:

Learn More

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PATIENTS

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AGE RANGE

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We support over 500 members touched by Vascular EDS. 

COL3A1


Vascular EDS is caused by a mutation in the COL3A1 gene.

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It is estimated around 740 people have Vascular EDS in the UK.