Ireland

Welcome to the Ireland VEDS Support Group. This group and our meetings are led by Ireland coordinator Scarlett.

Meet Scarlett Thomas

Scarlett joined Annabelle's Challenge in October 2023 taking on the role of patient coordinator.

"I am so pleased to be given this amazing opportunity to take on the role as a patient coordinator for the charity to help support all our members both existing and newly diagnosed. I have previous experience in childcare, and I love to travel especially to Ireland".

She is also a Mental Health First Aider accredited by MHFA England.

VEDS Support Group

Our regional face-to-face support groups are safe, confidential, relaxed meetings with lunch included!

Facilitated by our wonderful volunteer regional coordinators, all of whom have lived experience with vascular EDS either personally or in a caring role.

They offer a welcoming environment for you to meet others who are touched by vascular EDS. They provide a helpful way to share information, listen to each other’s experiences and together find ways of navigating the complexities of living with or caring for someone with vascular EDS.

Our support groups can help you build self-confidence, become more informed and this may lead to you becoming more in control of your life with vascular EDS. They help you feel you are not so alone including your loved ones.

How many vEDS members live in Ireland?