We are recruiting
Due to an increase in our membership numbers across the UK we are looking for volunteer regional coordinators in most regions.
This role is ideal for existing members who are impacted by vascular EDS either diagnosed or a carer for a loved one who has vascular EDS.
Our Next Support Group
VEDS Support Groups
A safe and supportive space
Our support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.
Led by people who understand
Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.
What you can expect
A welcoming place to:
- Share information and practical tips
- Listen to others’ experiences
- Explore ways of navigating life with vascular EDS
- Updates on your charity and research
- Light refreshments provided
- Free to attend
Wales Membership
32
5 - 71
This support group also have a private Facebook group where you can get peer support from other members living in Wales, please click here to request to join the group.
