VISION 2030
EDUCATION
RESEARCH
SUPPORT
Hope at the heart of Vision 2030
Vision 2030 is our long‑term strategic plan to improve the quality of life for people living with vEDS who deserve a future filled with stability, support and genuine hope.
Launched on 1st January 2025 it focuses on our core charitable objectives; Education, Research and Support — and builds on the strength of our successful VEDS Support Programme.
Together, we’re working to make more tomorrows possible for everyone affected by vEDS.
How your donations make a difference
We currently support more than 550 people living with vascular EDS in the UK, and we expect this number to grow to around 800 by 2030.
Donations are essential in helping us meet this rising need. Your support enables us to provide counselling, emergency preparedness resources, self‑advocacy tools and to invest in future research that will benefit the entire vEDS community.
Our goal is to raise an additional £1 million by 2030, a vital step towards expanding support and driving research forward.
How the money you raise can make a difference
£10
could fund a patient VEDS Emergency Pack and access to emergency preparedness resources.
£25
could give two people the chance to speak to a patient coordinator on our helpline.
£50
could give a member affected by vascular EDS access to a confidential, counselling session.
£100
could provide an in-person support group for up to 10 people touched by vascular EDS.
