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VEDS Conference 2017

VEDS Conference 2017

World's First vEDS Conference

50 Medical Professionals

240 Delegates

We are proud that Annabelle’s Challenge and The Ehlers-Danlos Support UK jointly hosted the first ever UK vascular EDS Conference on Saturday 6th and Sunday 7th May 2017 at the Village Hotel, Manchester Bury.

Speakers and content was provided by the NHS EDS National Diagnostic Service presenting medical professionals and patients the most up to date medical information about the treatment and management of vascular EDS.

The event also offered a unique opportunity for patients and families who are touched by vascular EDS to meet others with the condition, to share experiences and form lasting friendships.

Families attended the event and activities were supplied by Theatre Dance Studios providing a variety of sessions including dance, drama, singing, performing arts and crafts.
Victoria
Victoria Whatton, London UK, talks about vascular EDS from a parent's perspective.
Evie
Evie Evans, Ireland, talks about EDS from a patient's perspective and REDS4VEDS.
Isabella
Isabella Marin, Texas USA, talks about vascular EDS from a patient's perspective.

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Thank you to all our sponsors who co-funded the first ever vascular EDS conference in May 2017:
  • The Ehlers-Danlos Support UK
  • The Big Lottery Fund
  • Foyle Foundation
  • Susan Webb in memory of Louise Webb
  • The Freedman Family in memory of Jez Freedman
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