VEDS Support Groups

Get in touch

Helpline:

0800 917 8495

VEDS Support Groups

Our regional face-to-face support groups are safe, confidential, relaxed meetings for those touched by vascular EDS i.e. parents, carers, friends, children, and partners.

Facilitated by our wonderful volunteer regional coordinators, all of whom have lived experience with vascular EDS either personally or in a caring role. Our support groups provide a helpful way to share information, listen to each other’s experiences and together find ways of navigating the complexities of living with or caring for someone with vascular EDS.

Attending our support groups can help you build self-confidence, become more informed and this may lead to you becoming more in control of your life with vascular EDS. They help you feel you are not so alone including your loved ones.

It is free to attend ANY regional support group and lunch is included, simply select the region nearest to your location and book your free place/s.

Upcoming support group meetings:

March 2025

Saturday 8th - Yorkshire

Sunday 9th - North West

Thursday 20th - Members Meeting

Sunday 23rd - West Midlands

In-person regional support groups will be starting from March 2025.

Your Regional Coordinators

Meet Danika

Danika joined Annabelle's Challenge in April 2022 taking on the role of patient coordinator.

"Before joining the charity I was a childcare professional with 13 years’ experience of working with children and their families.

I have completed my studies of Mental Health and gained a qualification in Mental Health Awareness Level 1 and Level 2 in Social Care and Children’s And Young Peoples Mental Health and certified Level 2 in counselling skills."

Danika is a Mental Health First Aider accredited by MHFA England.

Meet Scarlett

Scarlett joined Annabelle's Challenge in October 2023 taking on the role of patient coordinator.

"I am so pleased to be given this amazing opportunity to take on the role as a patient coordinator for the charity to help support all our members both existing and newly diagnosed. I have previous experience in childcare, and I love to travel especially to Ireland".

Scarlett is a Mental Health First Aider accredited by MHFA England.