VEDS Support Groups

Support Groups

VEDS Support Groups

Our regional face-to-face support groups are safe, confidential, relaxed meetings for those touched by vascular EDS i.e. parents, carers, friends, children, and partners.

Facilitated by our wonderful volunteer regional coordinators, all of whom have lived experience with vascular EDS either personally or in a caring role. Our support groups provide a helpful way to share information, listen to each other’s experiences and together find ways of navigating the complexities of living with or caring for someone with vascular EDS.

Attending our support groups can help you build self-confidence, become more informed and this may lead to you becoming more in control of your life with vascular EDS. They help you feel you are not so alone including your loved ones.

It is free to attend ANY regional support groups and lunch is included, simply select the region nearest to your location and book your free place/s.

Upcoming support group meetings:

March 2025

Thursday 20th - Members Meeting

We are recruiting!

Due to an increase in the number of members joining us, we are a looking for volunteer regional coordinators to join Team AC in the following regions:

North East
North West
West Midlands
East Midlands

For further information and an informal chat call us on 0800 917 8495.

North East and North West

North East
Peter

North West
Danika
Yorkshire

Yorkshire & Humber
Sophie
The Midlands

East Midlands
Jared

West Midlands
Jared
London

London
Bonnie
South East and East of England

East of England
Claire

South East
Jacqui
South West

South West
Gemma & Taylor
Scotland

Scotland
Linda
Wales

Wales
Lynda
Northern Ireland

Northern Ireland
Scarlett
Ireland

Ireland
Scarlett & Mary
Australia

Australia
Bradley Jones

AUSTRALIA MEMBERS

Meet Danika

Danika - Patient Coordinator

Danika joined Annabelle's Challenge in April 2022 taking on the role of patient coordinator.

"Before joining the charity I was a childcare professional with 13 years’ experience of working with children and their families.

Recently I completed my studies of Mental Health at college and gained a qualification in Mental Health Awareness Level 1 and Level 2 in Social Care and Children’s And Young Peoples Mental Health and certified Level 2 in counselling skills."

Danika is a Mental Health First Aider accredited by MHFA England.

Meet Scarlett

Scarlett - Patient Coordinator

Scarlett joined Annabelle's Challenge in October 2023 taking on the role of patient coordinator.

"I am so pleased to be given this amazing opportunity to take on the role as a patient coordinator for the charity to help support all our members both existing and newly diagnosed. I have previous experience in childcare, and I love to travel especially to Ireland".

Scarlett is a Mental Health First Aider accredited by MHFA England.