Welcome to the North West VEDS Support Group. This group and our meetings are led by regional coordinator Amy.

Meet Amy Johnson

I have a background in care with 18 years’ experience working with people of all ages with various care needs.

I wanted to take on this role to give back to Annabelle’s Challenge, without whom I would be completely lost! And to also hopefully help others who could be struggling.

Oliver and I both have vEDS and have personal experience of living with this condition, we have been members of the charity since 2019.

VEDS Support Group

Our regional face-to-face support groups are safe, confidential, relaxed meetings with lunch included!

Facilitated by our wonderful volunteer regional coordinators, all of whom have lived experience with vascular EDS either personally or in a caring role.

They offer a welcoming environment for you to meet others who are touched by vascular EDS. They provide a helpful way to share information, listen to each other’s experiences and together find ways of navigating the complexities of living with or caring for someone with vascular EDS.

Our support groups can help you build self-confidence, become more informed and this may lead to you becoming more in control of your life with vascular EDS. They help you feel you are not so alone including your loved ones.

How many vEDS patients live in the North West?

35

MEMBERS

1 - 72

AGE RANGE

Our next support group:

Date: Sunday 9, March

Time: 12:30pm - 2:30pm

Location: Didsbury

Venue: The Didsbury, 852 Wilmslow Road, Didsbury, M20 2SG

View Venue

Booking Form

This support group also have a private Facebook group where you can get peer support from other members living in your region, please click here to request to join the group.