Welcome to the North West VEDS Support Group. This group and our meetings are led by regional coordinator Danika.
I joined Annabelle's Challenge in April 2022 taking on the role of patient coordinator.
Before joining the charity I was a childcare professional with 13 years’ experience of working with children and their families. Recently I completed my studies of Mental Health at college and gained a qualification in Mental Health Awareness Level 1 and Level 2 in Social Care and Children’s And Young Peoples Mental Health.
Alongside my role as a patient coordinator, I am also a Mental Health First Aider accredited by MHFA England.
I really look forward to meeting you at the next North West support group!
Our regional face-to-face support groups are safe, confidential, relaxed meetings with lunch included!
Facilitated by our wonderful volunteer regional coordinators, all of whom have lived experience with vascular EDS either personally or in a caring role.
They offer a welcoming environment for you to meet others who are touched by vascular EDS. They provide a helpful way to share information, listen to each other’s experiences and together find ways of navigating the complexities of living with or caring for someone with vascular EDS.
Our support groups can help you build self-confidence, become more informed and this may lead to you becoming more in control of your life with vascular EDS. They help you feel you are not so alone including your loved ones.
How many vEDS patients live in the North West?
Thank you for booking your place/s for the next support group. Any cancellations must be made at least 24 hours prior to the support group taking place.
This support group also have a private Facebook group where you can get peer support from other members living in your region, please click here to request to join the group.