Meet Amy
I have a background in care with 18 years’ experience working with people of all ages with various care needs.
I wanted to take on this role to give back to Annabelle’s Challenge, without whom I would be completely lost! And to also hopefully help others who could be struggling.
Oliver and I both have vEDS and have personal experience of living with this condition, we have been members of the charity since 2019.
Our Next Support Group
VEDS Support Groups
A safe and supportive space
Our support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.
Led by people who understand
Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.
What you can expect
A welcoming place to:
- Share information and practical tips
- Listen to others’ experiences
- Explore ways of navigating life with vascular EDS
- Updates on your charity and research
- Light refreshments provided
- Free to attend
North West Membership
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