Welcome to the North East VEDS Support Group. This group and our meetings are led by volunteer regional coordinators Connor and Peter.
Meet Connor Peebles
I am proud to be assigned the Regional Coordinator role for the North East of England. I am a support worker, empowering individuals with learning disabilities. My work focuses on upskilling, mentoring, and providing meaningful opportunities that enable them to live fulfilling and independent lives.
In addition to my role in the community, I own a bouncy castle and children's entertainment business, creating magical memories for families across the North East. Bringing joy to children and their families is at the heart of what I do, ensuring that every event is filled with fun and excitement.
Last year, I was diagnosed with vascular Ehlers-Danlos Syndrome (vEDS), a diagnosis I share with my son. While this has presented many challenges, it has also strengthened my determination to advocate for awareness and support for others affected by the condition.
Prior to our diagnoses I raised over £90,000 for various charities with a target of £100,000 by my 30th birthday. With this in mind, every single penny moving forward will be donated to Annabelle’s challenge.
I am delighted to be signed the role where I look forward to making a positive impact within our vEDS community.
Meet Peter Black
Hi, my name is Peter and live in County Durham and delighted to be the Area Coordinator for the North East.
In 2012, I was diagnosed with vascular EDS after a splenectomy in 2008 due to an aneurysm. I presently have 3 Aneurysms all on major arteries and one of which has dissected. I do have days when I am very tired due to all of this and other health related issues, and busy myself with my Model Railway.
Whilst this does stop many activities it does not stop me from researching matters and makes me think about how difficult it must be for the younger generation who have been diagnosed.
VEDS Support Group
Our regional face-to-face support groups are safe, confidential, relaxed meetings with lunch included!
Facilitated by our wonderful volunteer regional coordinators, all of whom have lived experience with vascular EDS either personally or in a caring role.
They offer a welcoming environment for you to meet others who are touched by vascular EDS. They provide a helpful way to share information, listen to each other’s experiences and together find ways of navigating the complexities of living with or caring for someone with vascular EDS.
Our support groups can help you build self-confidence, become more informed and this may lead to you becoming more in control of your life with vascular EDS. They help you feel you are not so alone including your loved ones.
How many vEDS members live in the North East?
29
1 - 70
Our next support group:
Booking Form
This support group also have a private Facebook group where you can get peer support from other members living in your region, please click here to request to join the group.
Freephone helpline
0800 917 8495
