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VEDS Retreat Weekends

Retreat Weekends

VEDS retreat weekends enable our members to come together and enjoy a free short break. 

Hosted by the Annabelle's Challenge team and usually supported by a genetic counsellor, the retreat weekends provide an opportunity for patients and families touched by vascular EDS to meet others, share experience and form lasting friendships.

565

VEDS PATIENTS

1 - 89

AGE RANGE

450

We support over 450 members touched by Vascular EDS. 

COL3A1

Vascular EDS is caused by a mutation in the COL3A1 gene.

800

It is estimated around 800 people have Vascular EDS in the UK.
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