Retreat Weekends
VEDS retreat weekends enable our members to come together and enjoy a free short break.
Hosted by the Annabelle's Challenge team and usually supported by a genetic counsellor, the retreat weekends provide an opportunity for patients and families touched by vascular EDS to meet others, share experience and form lasting friendships.
625
PATIENTS
1 - 89
AGE RANGE
10
Over 10 years service supporting the Vascular EDS community.
COL3A1
Vascular EDS is caused by a mutation in the COL3A1 gene.
740
It is estimated around 740 people have Vascular EDS in the UK.
