Get in touch
Helpline: 
0800 917 8495

                           Freephone helpline: 0800 917 8495      

Retreat Weekends

VEDS retreat weekends enable our members to come together and enjoy a free short break. 

Hosted by the Annabelle's Challenge team and usually supported by a genetic counsellor, the retreat weekends provide an opportunity for patients and families touched by vascular EDS to meet others, share experience and form lasting friendships.

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PATIENTS

1 - 89

AGE RANGE

VEDS Research

Learn More

10

Over 10 years service supporting the Vascular EDS community.

COL3A1

Vascular EDS is caused by a mutation in the COL3A1 gene.

740

It is estimated around 740 people have Vascular EDS in the UK.
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