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Conference Talks

VEDS Conference Videos

Conference Talks

The world's first ever vascular EDS Conference was jointly hosted by Annabelle's Challenge and The Ehlers-Danlos Support UK at the Village Hotel Manchester Bury on May 6th & 7th 2017.
The official opening of the world's first ever vascular EDS Conference
Jared Griffin, founder of Annabelle's Challenge opens the world's first ever vascular EDS Conference along with the Mayor of Bury, Cllr Mike Connolly.
An Overview of vascular EDS by Dr Diana Johnson
Dr Diana Johnson, Consultant Clinical Geneticist, NHS EDS National Diagnostic Service gives an overview of vascular EDS.
Molecular Genetics and vEDS by Duncan Baker
Duncan Baker, Clinical Scientist, Sheffield Diagnostic Genetics Service talks about the Molecular Genetics and vEDS.
Arterial Aneurysm and Dissection by Prof. Nigel Wheeldon
Prof Nigel Wheeldon, Consultant Cardiologist & Honorary Professor of Inherited Cardiac Conditions talks about Arterial Aneurysm and Dissection.
Vascular EDS Medical Emergency Card by Claire Green
Claire Green, Genetic Counsellor, NHS EDS Diagnostic Service talks about the vascular EDS Medical Emergency Card.
Management of vascular EDS in Childhood by Dr. Elena Cervi
Dr Elena Cervi, Consultant Cardiologist - Centre for Inherited Cardiovascular Diseases, Great Ormond Street Hospital talks about Management of vascular EDS in Childhood.
Research by Dr Neeti Ghali and Dr Fleur van Dijk
Dr Neeti Ghali & Dr Fleur van Dijk, Consultant Clinical Geneticist, EDS National Diagnostic Service talk about Research.
A Patient's Perspective by Isabella Marin
Isabella Marin, Texas USA, talks about vascular EDS from a patient's perspective.
MedicAlert by Sylvie Ehlers
Sylvie Ehlers, MedicAlert UK, talks about MedicAlert for vascular EDS.
REDS4VEDS by Evie Evans
Evie Evans, Ireland, talks about EDS from a patient's perspective and REDS4VEDS.
A Parent's Perspective by Victoria Whatton
Victoria Whatton, London UK, talks about vascular EDS from a parent's perspective.
Jared Griffin promotes vascular EDS Conference
Jared Griffin, founder of Annabelle's Challenge promotes the vascular EDS Conference & launch of our new mascot, Toby.
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