This picture was taken about a year ago when I had my first of many dissections due to myself having vEDS and at the time not knowing of my diagnosis.
Since then and finding out about my diagnosis this has became a familiar sight over the last year with wires and patches, contrast put through my veins, CT and MRI scans and the feeling of fear in my mind and on my face, hospital admissions via ambulance, collapsing and not having an answer at the time as to why my body was doing this.
Due to myself now having had multiple dissections all around my body I now live everyday to the fullest because as someone with a confirmed diagnosis of VEDS and knowing what this syndrome is capable off, life can take uncertain paths very suddenly, unexpectedly and very quickly.
In saying of all this tho, since learning of myself’s and my two sons diagnosis of Vascular Ehlers Danlos syndrome, I’m very excited to be able to participate in my first Reds4vEDS day coming up on Friday the 17th May 2019 to help raise awareness and support other families who are also affected by vEDS. Six days left until Reds4vEDS day guys!"
Thanks Bradley.