“The 300mls🚴🏻♂️🚴🏻♂️🚴🏻♂️/24hrs/ Des Dillon totals are in and I couldn’t be prouder of my twin brother for his hard work and relentless dedication through rain wind & snow when training for his challenging sponsor. Thanks to everyone involved and everyone who came to support him on the day. Vascular Ehlers Danlos syndrome is very rare and raising awareness is vital so your kind donations will go a long way in our efforts to do this, thank you all from the bottom of my heart. Watch this space for the next challenge from the amazing Des Dillon”. Linda Clamp.
What an amazing family I have, my twin brother doing a three hundred miles cycle and my sisters collected stuff they no longer needed and took it to a car boot sale without me even knowing, they raised £120 to help push Des up those hills. All to raise awareness of Veds and give us hope.