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Destiny's Story

“What does #REDS4VEDS actually mean to me? 

It’s more than an opportunity to raise awareness, it’s more than a chance to take a cute selfie. To me, this day is about knowing how much people care about you. To know how much support you have out there. 

Having VEDS isn’t easy, especially because there is no cure and there’s barely a treatment. So for me today is about realizing how many people are in my corner. It’s barely 7am and I see SO many people posting about REDS4VEDS and it makes me truly smile. 

There are people posting who I’ve barely spoken to, never met, forgotten about, it goes on and on and I am so very very thankful. 

Living with VEDS can be isolating at times and one can forget that there are more people out there that deal with on a day to day basis, but we also forget we aren’t alone. That there are people willing to talk to us and support us and help us. REDS4VEDS is a great reminder if that. 

So today as you wear red and tag me, please think of me personally thanking you for supporting me and being there for me. You are awesome!”
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